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Name: Susan G Sel
From: "Patton, Pa"
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"Susan G Sell Patton, Pa 16668 aunt of Hannah Grace Stiles who also has SMA Type 1"
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Name: Taylor's GiGi
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"Skylar, I want to thank your grandma for helping out my little granddaughter Taylor while she was sick at the Children's Hospital in Savannah. It was so helpful and a comfort for me to know that Taylor can go anywhere and there will be good people like your grandma helping out when I am so far away. I hope you are doing well and will continue to follow your special story. Taylor's GiGi "
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Name: Dr. Tiva
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"Love to you all and a big kiss to Skylar. I am still finding inspiration from the ""Twins"" to help other families with children with SMA but none shall be as special to me as Cassie and Skylar. May she rest in peace. Dr. Tiva"
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Name: Dawn Nolan
From: "Punta Gorda, FL"
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What precious little girls! Thank you for sharing your story. My prayers are with you and your family. I so wish for a cure or better treatment for SMA.
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Name: "charlie, lily, john and kim "
From: KS
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"Hi there! We just got a guestbook entry from your neighbors, Dawn and Bill Covert. They were with a couple (The Vento's) that knew of our daughter Taylor, who was diagnosed this past September with SMAII. You website and stories are beautiful. I only hope that we have some wonderful stories as you do. We are having a phenomenal time with Taylor -- she is so special and SO inspiring. She is always happy regardless of the fact that she can't do things as others can. I would love for you to visit our website: www.ourthreegirls.com to learn more. You and your husband are an inspiration to me. Thanks for sharing your journeys."
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Name:
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We were just thinking of you guys. We hope that Skylar is well and that Cassie is watching over you all. hugs and prayers
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Name: Pat
From: "McHenry, IL"
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"Thank you seems such a small thing to say, but it's the only words I have at the moment to tell you how deeply touched I am as I am reading Cassidy and Skylar's stories. Thank you for sharing your lives with us. Our kids are truly courageous angels and we are blessed to have the honor of knowing them. Sophia's Gran Sophia, SMA Type I"
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Name: Suzanne Gottschalk
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"Wow, you would never think buying something off of e-bay would lead you here. I got a link to your charity and am now sitting here with tears in my eyes with your story. You have an incredible family and a way with your words. Bless all of you and I will pray for your family.Thank you and Take Care!Fondly, Suzanne Gottschalk"
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Name: "Jez, Dionne and Cariad Howat"
From: UK
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"Not sure what to say, well done for raising such delightful young ladies - lord only knows the battles you have fought and won to allow such bright people a future! Our hearts go out to you. Living with SMA... Death is always something you suspect could happen on any given day, and you wake up relieved you have another day to enjoy something so precious and fun! The joy and spark of someone so dependant, yet so individual, it breath-taking. Well done for having the strength... and well done to both Cassidy and Skylar for being so determined, so anti-establishment!!! Looking at your website, I am sure we will correspond sometime soon. There are too many similarities in the fight not to. Right now - we are just proud of you guys; breaking the mould that SMA1 is supposed to put you in to! Love Jez, Dionne and Cariad Howat (UK)"
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Name: Lilias
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"Dear David and Dana It is many months since I looked at your website, and I felt so shocked and so sad when I read about Cassidy only just today. I have been a regular but intermittent visitor from the UK to your site and have found your beautiful girls a source of great inspiration. I too had twins girls, but just one of whom had type 1 SMA. Helena died at 3 and a half in June 04. We used to look at your site to get information, inspiration and never ceased to be in awe of your family. You helped us in ways you would not have known in managing our own daughter, and as I am sure you will have inspired so many people. We were also grateful to the little sling which Anita passed on, and which Helena found a joy to use. It helped her so much. Thank you. Lilias"
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