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Submitted by Comments:
Name: Brian Gagle
From: Melbourne Australia
E-mail: usainusa@gmail.com
We also had twins die of SMA in 2000. Our Twins had SMA Type 1. They died one week apart when they were 9 months old.
Added: July 11, 2013 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Hannah Price
E-mail: hnp1996@hotmail.com

 

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Added: March 7, 2013 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Jane Whitis
From: Kentucky
E-mail: jwhitis@live.com
We're hoping you have a really happy birthday, Skylar! How wonderful to be sweet sixteen!

Julia Kay's grandmama--Jane
Added: March 7, 2013 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Cynthia Rose
From: Tucson
E-mail: tqzangel@aol.com
I wish you a very very Happy Birthday. I wish I could be there for your Birthday Party. What a beautiful day. May God Bless you and your family forever. I love you.
Cynthia Rose
Added: March 7, 2013 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Emily Campbell
From: Goodlettsville, Tennessee
E-mail: emilygc@bellsouth.net
Hi -
My family owns Cabin #54 in Oak Haven Resort in Sevierville, Tennessee where you and your family stayed New Years 2012.
I read what you wrote in our journal and just wanted to check to see how you are.
My son had leukemia 9 years ago and was told he only had a 33% chance of survival. He beat it and is enjoying his 21st year of life. God works miracle everyday. You are blessed!!! Stay well!!! We will be praying for you - The Campbells
Added: October 14, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Angela Brock
From: Fort Valley, Ga
E-mail: adtb2000@yahoo.com

 

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Added: May 2, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Victoria Bristow
From: Norwich, England
E-mail: victoriah.bristow@gmail.com
My twin boys are 2. They have a rare type of SMA. I was inspired by your story. I wish you well.
Added: April 19, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Jami Newland
From: Savannah, GA
E-mail: jnewland@bryan.k12.ga.us
Hey Skylar! I love looking at the pictures of you! You were such a precious baby and are now a beautiful teenageer :) I hope you know how much I enjoy working with you! I also have enjoyed getting to know your family. Keep up the hard work and remember to have fun!

Love,
Mrs. Jami
Added: March 28, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Morgan Barron Steward
From: Social Circle / Covington GA
E-mail: morganslifefund@gmail.com
Hi Skylar,
Sorry it took a minute to catch-up but you know how SMA can be... slow! Anyhow, I hope you're well and taking care of the family. I turned three in July and everyone thinks I'm bossy!!! It's tough love I keep telling them, but they're not getting it.
We enjoyed Florida and hope to see you guys again real soon! I learned a new prayer... maybe you can learn it too. Here it goes...
As I lay me down to sleep, I pray to GOD my soul to keep. May Angels watch me through the night, and wake me in the morning light! Amen!
Love and Kisses! Morgan
Added: September 5, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sue Brown
From: Richmond Hill, Ga
E-mail: freespiritbrown@AOL.com
Dear Sky,
It has been a long time since I have seen you, but I say prayers for you every day and think of you often. Hope someone is still reading to you, there are so many good books. You and I seem to have much in common. I also saw Tim McGraw and he has always been one of my favorite singers too.

I am sorry you have been in the hospital, but soon you will be home. In your Blog picture you look so pretty. Hi to your mom, grandma, and brother.

May God continue to take the best care of you.
Love, Sue
Added: August 30, 2011 Delete this entry  Reply to entry  View IP address  

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