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Submitted by Comments:
Name: Victoria Bristow
From: Norwich, England
E-mail: victoriah.bristow@gmail.com
My twin boys are 2. They have a rare type of SMA. I was inspired by your story. I wish you well.
Added: April 19, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Jami Newland
From: Savannah, GA
E-mail: jnewland@bryan.k12.ga.us
Hey Skylar! I love looking at the pictures of you! You were such a precious baby and are now a beautiful teenageer :) I hope you know how much I enjoy working with you! I also have enjoyed getting to know your family. Keep up the hard work and remember to have fun!

Love,
Mrs. Jami
Added: March 28, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Morgan Barron Steward
From: Social Circle / Covington GA
E-mail: morganslifefund@gmail.com
Hi Skylar,
Sorry it took a minute to catch-up but you know how SMA can be... slow! Anyhow, I hope you're well and taking care of the family. I turned three in July and everyone thinks I'm bossy!!! It's tough love I keep telling them, but they're not getting it.
We enjoyed Florida and hope to see you guys again real soon! I learned a new prayer... maybe you can learn it too. Here it goes...
As I lay me down to sleep, I pray to GOD my soul to keep. May Angels watch me through the night, and wake me in the morning light! Amen!
Love and Kisses! Morgan
Added: September 5, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sue Brown
From: Richmond Hill, Ga
E-mail: freespiritbrown@AOL.com
Dear Sky,
It has been a long time since I have seen you, but I say prayers for you every day and think of you often. Hope someone is still reading to you, there are so many good books. You and I seem to have much in common. I also saw Tim McGraw and he has always been one of my favorite singers too.

I am sorry you have been in the hospital, but soon you will be home. In your Blog picture you look so pretty. Hi to your mom, grandma, and brother.

May God continue to take the best care of you.
Love, Sue
Added: August 30, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: The McAdams Family
From: MA
E-mail: hope4sky@yahoo.com
Hey there, Skylar...we are praying HARD for you that you are well enough SOON so that you can go HOME from the hospital. You have always (always, always) been one of our inspirations; have helped us immensely in caring for our Skyler these past 10 years. We KNOW you are a fighter - as our your parents and grandparents - and that you will be able to kick this illness in the fanny and be home soon! Please know you are constantly in our thoughts and prayers and that we're sending oodles of positive, healing energy your way!!

With lots of love,
Kim, Jeff, Luke, Casey and Skyler
Added: August 30, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Laura Calp
From: Savannah, Ga
E-mail: lcalp66@hotmail.com

 

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Added: June 7, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Morgan Barron Steward
From: Covington GA
E-mail: morganslifefund@gmail.com
Hello Skylar!
I would like to thank you for inviting me to the Angel Ball 2010. I'm only 2 yrs old, so my dad
is leaving this message. We had a blast while in Savannah. Today I have a small cough, but is hoping it passes. I'll be praying for you and your family. Dream a good dream for me tonight...
I'll do the same for you! Love you much!

Morgan Steward - SMA Type2
Added: November 21, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Zane Wood
From: LaGrange, Georgia
E-mail: zanewz@yahoo.com

 

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Added: April 11, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: The Brennans
From: Wilmington Island
E-mail: Brennanmom@comcast.net

 

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Added: October 12, 2009 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Ashley
From: New York
E-mail: avtiedemann@gmail.com
I have read the story of your sweet beautiful girls. It is really an inspiration! We have a 14 month old with severe Epilepsy that is not controlled, though we are still trying!
After reading what you all have gone through and overcome I am just in awe. Skyler, you and your sister are amazing girls! You give a lot of people hope and strength!
We fight for our girl everyday and we never stop praying! Your family is proof that God is full of miracles!
Keep fighting, and thank you for giving me some extra strength as well!
xoxo
Added: September 25, 2009 Delete this entry  Reply to entry  View IP address  

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