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Submitted by Comments:
Name: Isabel Brandao
From: Johannesburg South Africa
 Hi Cassie and Skylar You have such a beautiful website. Your story has really touched my heart and I will pray for both of you. I too had a little boy who was diagnosed with SMA Type I he passed away on the 2nd August 2000 he had just turned 4 months. He was my pride and joy and even though I had him for such a little time - he really has changed my life. Hang in there Cassie and Skylar I do believe in miracles. God Bless
Added: 9-Oct-00 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sue Hatchett
From: "Lamar, AR"
 We just lost our grandaughter of 10months to sma1. She not only touched our lives but the whole community.She is really an Angel now. She was diagnosed at 5months but never got sick until now which took her life the first time she got down.I like your website and am praying for ya'll. Let's all join in to find a cure for this dreadful disease. Thanks for letting me write in your guestbook.
Added: 4-Oct-00 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Blanche Davis
From: "Ft Stewart, Ga"
 "Hi Cassidy and Skylar, It has been nice visting your webb site. I work with your Papa Brown everyday. He sure does make me work real hard. Sometimes he gets real mean and acts like a big mean bear. I have to go sit at my desk and get real quiet so that I won't cry. I love your pictures, your so pretty. I hope you have a good day. Please take care and God Bless you. Love Ya, Blanche "
Added: 3-Oct-00 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Debbie Burgess
From: "Richmond Hill, GA"
 "Hey Cassidy and Skylar, I know we haven't seen each other lately but I just wanted you to know I think of you often and always keep you in my prayers. You are brave little girls with so much courage who give me such inspiration. Thank you for allowing me to be part of your life! Love, Debbie"
Added: 1-Oct-00 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Melvin Clarke
From: "ahiohill enniskeane co cork, ireland"
 best wishes to you and your family you are often in our prayers. my daugther rachel has s.m.a.2
Added: 27-Sep-00 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Michelle & Ray Stoll
From: "Fresno, CA "
 "I've wanted you to know that your website was instrumental in the diagnosis of one of our seven month old twins. While Ryann Rose was in the picu on a ventilator and without a diagnosis, I stumbled upon your site. I will never forget that night, the empty feeling in my stomach and the tears pouring from my eyes. I copied the info and presented it to the geneticist who in turn agreed to the DNA testing. Within two weeks our infant daughter Ryann Rose was taken off life support and released from all the pain of those medical interventions. In the end, it was not her prematuriy from the early birth of the twins it was indeed a positive diagnosis of SMA type 1. I believe that my prayers somehow lead me to your site that night back in November of 1999. I was determined to educate myself on what myopiathy and mitochrondial exactly meant. I was drawn to an article on twin girls and the story ends there. Ryann's twin brother is now 17 months old and he is a constant reminder of the angel we now have watching over us.I pray for your family and please accept my most sincere thanks for sharing your story. "
Added: 26-Sep-00 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Nisar Elahi
From: "Karachi, PAKISTAN"
 "Hi Angels, Unfortunately I am also suffering from SMA. We are in a same boat I hope in near future there will ba cure of this disease."
Added: 25-Sep-00 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: rev. mark trambley
From: "bloomington springs, tn"
 "I pray that Jesus will provide his healing powers to totally remove the illness these children are burdened with and that His healing powers will restore faith in HIM IN YOUR FAMILY AND ALL WHO HAVE BEEN EFFECTED BY THIS UGLY, EVIL ILLNESS. Praise the Lord for He is good and His love endures forever."
Added: 22-Sep-00 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sharon Finlay
From: "Belfast, N Ireland "
 "My daughter Sarah was with us only 8 short months,she had type 1 spinal muscular atrophy. she brought so much love into our home in the short time she was with us,everyone who came in contact with her fell in love with her beautiful smile and eyes. she is truly with the angels now. we wish your two beautiful children all the best and hope that their is a cure found soon for this terrible illness that takes away our loved ones from us"
Added: 22-Sep-00 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Maribeth Mooney
From: New York
 It breaks my heart that there is not more public awareness or funding for this devastating condition. My beautiful God-Daughter Emily was diagnosed a few weeks ago. Sites like this and kind words from all the other families going through this give us hope and strength. Emily's arrival brought incredible joy and love to our family. We must believe in miracles!
Added: 13-Sep-00 Delete this entry  Reply to entry  View IP address  

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