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Submitted by Comments:
Name: Tina Krajewski
From: "Chicago, IL"
"Thank you so much for sharing your family's story. My 5 month old daughter, Allyson, was diagnosed last week with Type 1 SMA. I'm going through a lot with my family as I try to learn about the disease and what I can do to best help my daughter and family. Stories and support from families like yours are the beginning signs of hope and support. Thanks, Tina Krajewski Chicago, IL tina617@comcast.net "
Added: 17-Jul-06 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Pam Moore
"To Cassidy's Family: Though we've never met, I feel like I've lost a family member, too, because of Ann. Her reports about ""Our Girls"" have always helped Ga ARCH members get to know Cassie and Skylar and to care for them as two of our own. I've prayed for you all over the years and want you to know that I will continue. May God gently hold your hearts in His hands until you see your sweet princess again. Pam Moore and Callie (also a princess) "
Added: 6-Jul-06 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name:
"dearest dana, david, precious skylar & family, you are all in our thoughts, hearts and prayers. may god bless you with strength and peace... to cassidy's clebration of life. thank you for sharing cassie's wonderful memorial, i wish we could have met and known her. we love you always, kaelan and karlie henry's mommy ruthie & family!"
Added: 6-Jul-06 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Ariana Whipple
From: "Pooler, GA"
"My name is Ariana Whipple, I'm 12 yrs old. I'm sorry about the death of Cassie and I will always pray for Skylar and I will always think of Cassidy in my prayers! Tell Syklar to stay strong, that I love her and that I will always pray for her! "
Added: 4-Jul-06 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Lidia and Marco Roman
From: "San Antonio, Texas"
"We will pray that God will grace you with His peace and surround you with His comfort during this time. We lost our son, Joseph 6 years ago to SMA and we unite ourselves to your sorrow. Our hope is in the Lord who made heaven and earth! With love and prayers, Lidia and Marco Roman"
Added: 3-Jul-06 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Marie Fesler
From: "Valdosta, GA"
"God Bless All of You! Dana and David, you do not know me but I know of your family through Anne, Dana's mama. I am in the advocacy group GA ARCH. I have a daughter Shanna who was born with severe disabilities that I have asked a million times ""why?"". She was born with severe deformities that have caused her severe respiratory problems. She is trached, oxygen dependent, partial ventilator dependent, seizures, mental retardation, etc. We also receive nursing care. Her life has been one long battle. She is 19yrs. old and was never suppose to live beyond a couple of years. I have been feeling exhausted lately and depressed because I lost my mother (also my lifeline) in February from cancer. I have questioned myself lately about was all this worth it but after reading your memorial about Cassidy I feel uplifted to keep on fighting. The one thing you said about her being whole now and looking so peaceful lets us all know there IS a Heaven and it is wonderful beyond our comprehension. I pray for your family because I know you miss her and it hurts, but she doesn't anymore. Time will make it easier but your little princess will never be forgotten. Sincerely, Marie Fesler mother of Shanna Fesler"
Added: 28-Jun-06 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name:
"I'm so sorry for your loving family's awful loss, but celebrate all of you for your love and commitment to your children and to those of other families. Ann is the one of you I've had the gift of knowing through GA ARCH meetings, but she has given us all a clear sense of who you are. Dana's piece made me cry, but it made me laugh, too. My heart goes out to Skylar and to all of you."
Added: 28-Jun-06 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Michael
From: Atlanta
I did not have the honor of meeting Cassie. Thank you for sharing your memories.
Added: 28-Jun-06 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Ortego Family
"Dana,David, and Skyler, we are hurting for you. if you need someone to listen, i am always here. just email me and i will get in touch. Skyler you are a very special sister.. We love you.. The Ortego Family lovebindsus@bellsouth.net http://www2caringbridge.org/la/hollyann"
Added: 27-Jun-06 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Michelle Green
From: "Savannah, GA"
"I'm so very sorry to hear of your loss. Though I've never met the girls personally, I've been to several SMA balls and felt a connection to them. Please know my thoughts and prayers are with your whole family especially Skylar."
Added: 26-Jun-06 Delete this entry  Reply to entry  View IP address  

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