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Submitted by Comments:
Name: The Brennans
From: Wilmington Island
E-mail: Brennanmom@comcast.net

 

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Added: October 12, 2009 Delete this entry  Reply to entry  View IP address  
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Name: Ashley
From: New York
E-mail: avtiedemann@gmail.com 		I have read the story of your sweet beautiful girls. It is really an inspiration! We have a 14 month old with severe Epilepsy that is not controlled, though we are still trying!
After reading what you all have gone through and overcome I am just in awe. Skyler, you and your sister are amazing girls! You give a lot of people hope and strength!
We fight for our girl everyday and we never stop praying! Your family is proof that God is full of miracles!
Keep fighting, and thank you for giving me some extra strength as well!
xoxo
Added: September 25, 2009 Delete this entry  Reply to entry  View IP address  
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Name: Dr. Tiva
From: Lubbock, TX
E-mail: t.kasemsri@ttuhsc.edu 		Greetings from Texas. Hi Skylar. Just wanted to let you know that I am using the knowledge I learnt from you, your sister, your parents, and your grandma when we were together to help another child and another health care team. The main lesson that I tell people who will listen is that we, doctors, nurses, and rt's do not know everything especially about SMA. Your mom can tell you about how I was typical in thinking that I knew what was best for you and your sister. It was by her persistence that I saw the truth and became your student especially when it came to BiPap and Cough-Assist machines. I think of you often and the lessons I learnt. Love, Dr. Tiva
Added: August 5, 2009 Delete this entry  Reply to entry  View IP address  
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Name: Linda Saunders
From: England
E-mail: lnd_saunders@yahoo.co.uk

 

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Added: June 13, 2009 Delete this entry  Reply to entry  View IP address  
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Name: Mary Brown
From: Hinesville
E-mail: mbrown827@comcast.net 		Hey guys!!!! I had you on my mind and checked Skylar's page and saw all the wonderful things she has been up to....WOW !!!! She has turned into such a busy body!Please give my love and lots of hugs and kisses to my favorite "Buzzard". Love and miss you Sky...I love you!!!
Added: May 16, 2009 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Dana
 Skylar,
You make me so proud!
Love,
mama
Added: May 13, 2009 Delete this entry  Reply to entry  View IP address  
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Name: Kim & Skyler McAdams
E-mail: oursmaprincess412@yahoo.com

 

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Added: December 9, 2008 Delete this entry  Reply to entry  View IP address  
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Name: trista ramshur
From: cleburne tx
E-mail: buttercup074@yahoo.com 		i just found out today that my 5 month old daughter had sma 1 stage. we have been to several doctors now just to see what was wrong with her then we had to wait a month for the results to come back positive. my family is so devastated because we have never had to deal with any thing this serious. we have no clue what to do. so if any one has any thing that could help us please dont hesitate to email me. Me and my husband are only 19 so we are not to educated on stuff like this so if you can help please do.
Added: November 11, 2008 Delete this entry  Reply to entry  View IP address  
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Name: Annette Swetnam
From: Indiana
E-mail: annetteswetnam@gmail.com 		Hi Swanson family,
I'm not sure how my husband Doug stumbled across your beautiful site while he stayed up the other night when we didn't have a nurse (he was letting me sleep because I'd been working the past few days as a freelance makeup artist at Saks) but when I got up the next day and attempted
to wake up while reading news on the computer I came across your site with the bittersweet story of your family. As a mother of two girls who have been affected with SMA since infancy I was racked with grief upon reading your story. It is my daily fear and worst nightmare to lose either one of my girls. You are all brave beyond words.
We were lucky enough to be rewarded with a trip to Orlando last fall by Make-A-Wish so now Betsy and Katie are sure that we need to take another trip. I've decided that we should come to Savannah for your Angel's Ball in November which is both of my girl's birth month. I think it'd be a wonderful trip for my all of us. I just really wanted to let you know how inspiring your family is. Thank you ~ Annette Swetnam
Added: September 29, 2008 Delete this entry  Reply to entry  View IP address  

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